Legacies

Life. Something that isn't ours to give or take away. When we see the price a life is worth, we see things in a different way. Having your legacy continue on is something we all secretly desire. One thing we as spoonies do not realize is that, sometimes our legacies can not continue. Sometimes that legacy is a lifetime of chemo and pain meds. I've always said that we had our kids early, but God knew the reasons why. What if I had waited? I would not be in the stage of life I am now. I am thankful that we had that option. But for so many, that choice was made for them before they could ever consider a family. The Lord wishes for everyone, including Spoonies, to experience life...and life more abundantly. In today's society we have options to help our legacies and life go one even after we are gone. As a teacher, we have the chance to be a part of so many children's lives. In turn, they become a part of our legacy. Thankfully our story doesn't have to end with negativity. Anything is possible when our heart is open to love and opportunity. 

Loneliness is a hard pill to swallow...thankfully it's not always necessary!

Shop talk. Being understood. Knowing that you're not alone on this journey. If you would've told me five years ago that I would have a positive impact on others in the Spoonie community I would've told you that you were crazy. Every Spoonie faces different challenges, but we have one common thread that ties us together....our bodies fight a battle against itself. And even though others try to empathize with us, no one but a Spoonie can truly know how that feels. The age old saying about misery loving company comes to mind...but maybe in not so much a bad way.  The comfort in knowing that we are not alone, this is not in our heads, and our pain is very real all brings peace to our souls when we find a kindred spirit. Even in our lowest moments, God has a way of reminding us that He is still in control. He has given us a chance to be with a community of weirdos who share our same quirks. A place where we can compare our symptoms and allergies.  This place is our safe haven. The place where we can be ourselves. If we have the chance to find such a place, grab on to it with both hands, hold on tight and NEVER let go.  Being understood is the closest thing to a cure that we can ever experience.