Beauty is only skin deep

Beauty. In our age, we are defined by the world's definition of beauty. But as a spoonie our bodies change. Our insides are constantly fighting against itself, and our outward body is constantly, slowly deforming. We sacrifice every ounce of our being to help others just to feel needed and purposeful. Sometimes the sacrifice comes at a greater cost than some can ever imagine. In a typical life, one might give up an hour of their day to drive a friend to a dept store. That hour of a typical day doesn't mean much, but to a Spoonie every hour is carefully calculated to produce the best results. When our help is paid back with lies and deceit we find it more and more difficult to stay positive. The stress that is birthed from that situation causes a flare, and in turn the flare leads to swelling and joint deformations. The never-ending cycle of pain and suffering.  Things that some see as harmless can cause detrimental results to a Spoonie. It's bad enough that we are looked upon as being "outsiders" because we can't wear the latest and greatest fashion trends, but we can change the world one voice at a time. Find your voice, let the world know that you are beautiful, and stand firm on your two feet! 

Warriors

Warriors.  Strength, humbleness, humility, and selflessness...in my opinion are all traits of a true warrior.  Spoonies are way too often looked down upon as being lazy. No one realizes the battle that happens to us daily just to function as a "normal" humans. We fight to get a good night sleep, we fight to get out of bed, we fight to turn the knob of the bathroom just to get ready, the list goes on and on. What you take for granted, it is a true struggle for us. But then we see insurance companies pushing us to "get more active" and "get healthier" just so they don't have to pay as much for us on coverage. Do you they not realize that if asked, every one of us would gladly trade our bodies for a healthy one. I would love to be able  to run a marathon, or just RUN for that matter! Instead, I have to think about my hip, knees, and back that will hate me the next three days after! I've had time to come to terms with this way of life, and I have had time to learn my limits. And yes it SUCKS. Sixteen years is a long time to come to terms with the Spoonies life. We fight the hardest battle that you can fight every day...the fight against our own body. The true warrior within, always hidden but never forgotten!